The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Help Lafora Patient Zaina and Family Evacuate Gaza
/by Christine KellyLafora patient Zaina and her family want to evacuate Gaza; donate to their GoFundMe today. A 17-year-old from Gaza City has Lafora Disease. Her entire family has been bombed, and they evacuated their home. They have moved across Gaza several times to escape the fighting. They have been displaced into a shelter and ran out […]
2023 Annual Letter
/by Christine KellyBelow is Chelsea’s Hope annual progress update and appeal from our President, Frank Harris, Ph.D. If you did not receive a copy of the 2023 annual letter by email or direct mail, please email us. Then, we will get you set up for the future. Read the Letter Dear community, As we approach the end […]
Chelsea’s Hope Earns 2023 Silver Seal
/by Christine KellyChelsea’s Hope is thrilled to announce we’ve just earned our 2023 Silver Seal from Candid! We are excited to share the work our nonprofit does through our Guidestar nonprofit profile. We want to ensure you have the progress updates you need to support our work with trust and confidence. Chelsea’s Hope is committed to our […]
Announcing Vice President Jenifer Merriam
/by Christine KellyMeet the Board of Director’s Vice President, Jenifer Merriam Jenifer Merriam is a mother of two children, Anissa and Ty, affected with Lafora Disease. At her daughter’s diagnosis in 2016, she was told there were no treatments or cures. She left that appointment hopeless and not sure what to do. Jenifer began the isolating journey […]