The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Press Release: United Against Lafora, Families Worldwide Raise Awareness
/by Chelsea's HopeOctober 1st will be the 6th annual awareness campaign for Lafora disease. SACRAMENTO, Calif. – September 24, 2026 – Chelsea’s Hope Lafora Children Research Fund announced that October 1st, 2026, is the 6th annual Lafora Body Disease Day. The organization will raise awareness to support children fighting for their lives, find answers for families feeling […]
New Resource: Lafora Anti-Seizure Medication Guidelines
/by Chelsea's HopeWe have a new resource for families developed by some members of our Lafora Clinical Network: Anti-Seizure Medication Guidelines. This document provides information to help Lafora families discuss seizure management with their clinicians. Special thanks to the clinical working group led by Dr. Roberto Michelucci, who put together these guidelines. You can now download the […]
Join in Lafora Body Disease Day 2026!
/by Chelsea's HopeIt’s that time of year again! We recognize October 1, 2026, as Lafora Body Disease Day. Chelsea’s Hope will raise awareness to support children fighting for their lives, find answers for families feeling overwhelmed, and accelerate the development of treatments. We need your participation to make it a success! Creating awareness is key to more […]
Lafora Therapy Q&A Resources
/by Chelsea's HopeThank you to everyone who joined our recent Lafora Disease Therapy Q&A sessions. We are grateful for the thoughtful questions families submitted and for the continued advocacy, patience, and hope within this community. During the sessions, we reviewed several new resources created to help explain the current Lafora disease therapy landscape, where different therapies stand […]