About Chelsea’s Hope
The mission of Chelsea’s Hope is to raise funds for research, treatment, and ultimately, a cure for those affected by Lafora Disease.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization.
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834
949-812-8823 – Frank Harris (President)
Chelsea’s Hope Patient Assistance Grant Deadline Extended
/0 Comments/in News, What's New /by Frank HarrisDear Lafora Families,
With funding from the Global Genes’ Continuity of Care RARE Patient Impact Grant, Chelsea’s Hope is offering grants to Lafora Households Impacted by COVID-19.
Limited funds are available, but we hope to help as many patients as possible. The application deadline has now been extended a week to December 7, 2020. All applications will be reviewed with the goal of making awards by December 15, 2020. Please contact Chelsea’s Hope with any questions or for help completing the form.
Chelsea’s Hope Patient Assistance Grant
The Epilepsy Foundation Releases Statement on Coronavirus
/0 Comments/in News, What's New /by Frank HarrisThe Coronavirus has affected our daily dialogue. Chelsea’s Hope understands that to those caring for a Lafora patient, concerns are even greater. The Epilepsy Foundation has released the following brief on the coronavirus.
Concerns About Coronavirus
5th LECI workshop Paper
/0 Comments/in News, What's New /by Alan Barter“The 5th International Lafora Epilepsy Workshop: Basic science elucidating therapeutic options and preparing for therapies in the clinic”
5th LECI workshop Paper
2019 Lafora Disease Spotlight – Thomas
/0 Comments/in News, What's New /by Alan BarterThe following video was presented at the 5th International Lafora Epilepsy Workshop in Madrid: Chelsea’s Hope Lafora Disease Spotlight
Lafora Documentary to Be Shown at San Francisco Film Festival
/0 Comments/in News /by Frank HarrisDisorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. Most (but not all) of the films are documentaries. Many are less than 15 minutes. This year’s festival, scheduled for November 9th and 10th, will include Faces of Lafora, a documentary film by Denis Bojic. Faces of Lafora illustrates the heartbreaking impact that Lafora Disease has on patients and their families, as well as the efforts to find a cure for this horrible disease. Read more
Summary of 2019 Lafora Workshop
/0 Comments/in News /by Frank HarrisSummary of 2019 Lafora Workshop
5th International Lafora Disease Workshop
/0 Comments/in News /by Alan BarterThe 5th International Lafora Disease Workshop is scheduled for September 9-11, 2019 in Alcala Spain.
Please see attached for additional details.
2019 LD workshop
Important paper published today on advances in research …
/0 Comments/in News /by Alan BarterNew paper titled, “Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion”, published today!
Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion
Brewer et al., Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion, Cell Metabolism (2019), https://doi.org/10.1016/j.cmet.2019.07.002