The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
New Resource: Lafora Anti-Seizure Medication Guidelines
/by Chelsea's HopeWe have a new resource for families developed by some members of our Lafora Clinical Network: Anti-Seizure Medication Guidelines. This document provides information to help Lafora families discuss seizure management with their clinicians. Special thanks to the clinical working group led by Dr. Roberto Michelucci, who put together these guidelines. You can now download the […]
Join in Lafora Body Disease Day 2026!
/by Chelsea's HopeIt’s that time of year again! We recognize October 1, 2026, as Lafora Body Disease Day. Chelsea’s Hope will raise awareness to support children fighting for their lives, find answers for families feeling overwhelmed, and accelerate the development of treatments. We need your participation to make it a success! Creating awareness is key to more […]
Lafora Therapy Q&A Resources
/by Chelsea's HopeThank you to everyone who joined our recent Lafora Disease Therapy Q&A sessions. We are grateful for the thoughtful questions families submitted and for the continued advocacy, patience, and hope within this community. During the sessions, we reviewed several new resources created to help explain the current Lafora disease therapy landscape, where different therapies stand […]
Student Ambassador Applications Open
/by Chelsea's HopeAnnouncing a new program for student volunteers looking to support the Lafora community! If you are a current university student in the United States, consider applying for our Student Ambassador Program this fall. Student Ambassadors will be trained to host events on their campus to raise awareness and funding for Lafora disease research. Applications for the fall semester are open from now […]