The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Chelsea’s Hope Earns 2024 Platinum Seal of Transparency
/by Christine KellyChelsea’s Hope is thrilled to announce we’ve just earned a Platinum Seal of Transparency from Candid for 2024! We are excited to share the work our nonprofit does through our Candid nonprofit profile, and we invite you to view it and keep up to date with our impact. We shared information about our mission, programs, […]
Epilepsy Day and SAP 2024
/by Christine KellyChelsea’s Hope Supports Epilepsy Day and Seizure Action Plan Awareness Week 2024 Chelsea’s Hope proudly supported Epilepsy Day on Monday, February 12, 2024. This International Epilepsy Day, we joined in raising awareness on social media, including sharing facts about Lafora progressive myoclonus epilepsy. For example… Did you know? Seizures in adolescence are one of the […]
Giovanna’s Story
/by Christine KellyGiovanna Monda has three children affected by Lafora disease. Christian, the oldest, passed in 2021. Then, Tracy and Carmen were diagnosed with Lafora disease in 2022. Giovanna shares her family’s story below. Select the toggle to read the original version in Italian or an edited version in English. Every bit will directly help her family. […]
Announcing February Research Roundtable Speakers
/by Christine KellyDr. Mitra and Jeff Milton to Join Chelsea’s Hope Lafora Disease Research Roundtable on 8 February We are excited to announce the two speakers that will present at our February research roundtable. Sharmistha Mitra, Ph.D., is an Instructor in the Department of Pediatrics, Division of Child Neurology at UT Southwestern Medical Center. She joined the UT […]