The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
FACE it Campaign
/by Riley HawkinsOn September 20th, 2023, Chelsea’s Hope will be joining Childhood Dementia Initiative in the FACE It campaign! September 20th is Childhood Dementia Day, meaning it’s the perfect opportunity to make childhood dementia Impossible To Ignore. We invite you to join by painting your face or having fun with make up. Together, we’ll draw attention to […]
Lafora Disease Therapeutic Overview
/by Christine KellyChildhood Dementia Webinars
/by Christine KellyOur friends at Childhood Dementia Initiative are hosting three childhood dementia webinars we want to let you know about! 1. Childhood Dementia Introduction Tuesday, 5th September 2023 from 10:30 – 11:30 pm EST 2. Accessing Emerging Treatments for Childhood Dementia Thursday, 7th September from 6 – 6:45 pm EST 3. We Don’t Fit Report Tuesday, […]
Ask the Experts: A Q&A Session for Lafora Families
/by Christine KellyFamilies, do you have questions about therapies and treatment for Lafora Disease? You have a chance to ask the experts! You’re invited… EVENT: Ask the Experts: A Q&A Session for Lafora Families DATE: Monday, August 28, 2023 from 3-4:30 pm EST LOCATION: Zoom. Please register for the meeting link. Keep reading for more details about […]