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News & Blog

Mom’s Camp

September 1, 2011/by Chelsea's Hope

September 2011 San Juan Island, Washington The idea of summer camp brings forth childhood memories of beaches and lakes, freedom to play all day, late nights with new found friends, sunburns, boating, hiking, and the excitement to get away from the day to day routine of life. For mothers of severely ill children, the thought […]

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Living with Lafora: rare disease affecting Malden teen

April 21, 2010/by Chelsea's Hope

KFVS News – “Living with Lafora: rare disease affecting Malden teen” [Read more]

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ALIVE Magazine -Chelsea’s Hope

May 1, 2009/by Chelsea's Hope

ALIVE Magazine -Chelsea’s Hope [Read more]

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Charitable Giving From the Heart

November 1, 2008/by Chelsea's Hope

Charitable Giving From the Heart In the simplest terms, it is do-it-yourself philanthropy. [Read more]

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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

  • Press Release: United Against Lafora, Families Worldwide Raise Awareness

  • New Resource: Lafora Anti-Seizure Medication Guidelines

  • Join in Lafora Body Disease Day 2026!

  • Lafora Therapy Q&A Resources

  • Student Ambassador Applications Open

  • Social Security Added Lafora to Compassionate Allowances List

  • Elpida Therapeutics’ Press Release

  • ION283 to be Developed by Elpida Therapeutics

  • Update on the ION283 Program from Telethon

  • Introducing the Lafora Clinical Network Registry

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

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Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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