Linda and Chelsea Gerber
If someone you love is newly diagnosed with Lafora disease, you are in the right place. Chelsea’s Hope is a worldwide team of Lafora disease family and friends dedicated to finding a cure. We have been where you are now, and we understand the emotions you are experiencing.
Chelsea’s Hope wants to connect with you and answer any questions you have. You have a Lafora disease family to support you.
It is important to keep our community connected and our families informed.
The first step is to sign the informed consent form, so if you are interested, please email registry@lafora.es.
Finally, everyone is welcome to give us a like on Facebook! The Lafora disease community spans families to include friends, clinicians, researchers, industry partners, and well-wishers. Please follow along for the latest updates and check out our latest post to the right.
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Christine Kelly2023-03-08 11:26:352023-04-20 09:58:47Mia Vivian Clement
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Chelsea's Hope2022-12-21 10:34:272023-05-17 15:22:03Alexis Rodriguez
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Chelsea's Hope2022-03-09 21:58:572023-03-16 10:40:58Jessica Nicole Ambroe
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Markou2022-01-31 23:43:542023-09-01 13:33:36Anissa Merriam
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Markou2021-09-28 18:04:372022-02-17 19:43:01Gehad Breadiy
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Markou2021-09-28 17:56:072022-02-17 19:47:40Khari McCrary
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Chelsea's Hope2020-10-21 06:28:372023-09-19 20:04:12Angelina Lati
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Alan Barter
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Alan Barter2019-12-04 08:31:542022-12-27 06:48:10Thomas Barter
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Chelsea's Hope2017-09-24 23:16:092023-05-12 14:37:19Milana GajicThe mission of Chelsea’s Hope is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization.
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Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834
Announcing ICD-10 Codes for Lafora Disease
/in News, What's New /by Christine KellyWe are thrilled to announce that newly designated, unique ICD-10 Diagnostic Codes for Lafora Disease will be effective on October 1, 2023. Lafora progressive myoclonus epilepsy, or Lafora Disease, an ultra-rare neurodegenerative disorder affecting children, has been assigned code G40.C, falling under the G category of diseases representing nervous system disorders. This development marks a […]