Linda and Chelsea Gerber
We are a worldwide team of Lafora Disease family and friends dedicated to finding a cure. We have been where you are now, and we understand the emotions you are experiencing.
We want to connect with you and answer any questions you have. You have a Lafora disease family to support you.
Join our Lafora disease family page on Facebook, a private space to share information about caring for a loved one with Lafora disease. Connect with a community that understands exactly what you’re going through! The Facebook group is a place where we can share concern, love, support, and hope with each other.
Please note: your approval request may be denied if you do not answer the questions or are not a Lafora disease family member.
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Christine Kelly
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Christine Kelly2023-03-08 11:26:352023-03-14 11:56:00Mia Vivian Clement
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Chelsea's Hope
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Chelsea's Hope2022-12-21 10:34:272023-03-14 16:49:51Alexis Rodriguez
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Chelsea's Hope
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Chelsea's Hope2022-03-09 21:58:572023-03-16 10:40:58Jessica Nicole Ambroe
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Markou
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Markou2022-01-31 23:43:542022-02-17 19:25:02Anissa Merriam
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Markou
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Markou2021-09-28 18:04:372022-02-17 19:43:01Gehad Breadiy
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Markou
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Markou2021-09-28 17:56:072022-02-17 19:47:40Khari McCrary
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Chelsea's Hope
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Chelsea's Hope2020-10-21 06:28:372023-03-14 06:45:44Angelina Lati
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Alan Barter
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Alan Barter2019-12-04 08:31:542022-12-27 06:48:10Thomas Barter
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Chelsea's Hope
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Chelsea's Hope2017-09-24 23:16:092023-03-08 07:21:05Milana GajicThe mission of Chelsea’s Hope is to raise funds for research, treatment, and ultimately, a cure for those affected by Lafora Disease.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization.
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834
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Update on Myozyme and Lumizyme drugs from Sanofi for Lafora Disease treatment
/0 Comments/in News, What's New /by Christine KellyChelsea’s Hope continues to champion the development of effective Lafora disease (LD) therapeutics in both the research community and with interested companies. One recurring question is whether currently used therapeutics for other glycogen storage diseases could be used in LD. As you know, this would greatly benefit our community, allowing rapid therapeutic adoption. Because of […]