Newly diagnosed with Lafora disease?
We are here to help you.

Linda and Chelsea Gerber
If someone you love is newly diagnosed with Lafora disease, you are in the right place. Chelsea’s Hope is a worldwide team of Lafora disease family and friends dedicated to finding a cure. We have been where you are now, and we understand the emotions you are experiencing.
Chelsea’s Hope wants to connect with you and answer any questions you have. You have a Lafora disease family to support you.
Announcing ICD-10 Codes for Lafora Disease
/in News, What's New /by Christine KellyWe are thrilled to announce that newly designated, unique ICD-10 Diagnostic Codes for Lafora Disease will be effective on October 1, 2023. Lafora progressive myoclonus epilepsy, or Lafora Disease, an ultra-rare neurodegenerative disorder affecting children, has been assigned code G40.C, falling under the G category of diseases representing nervous system disorders. This development marks a […]