Social Security Added Lafora to Compassionate Allowances List

Big news for the Lafora community in the United States! The Social Security Administration (SSA) added Lafora disease to its Compassionate Allowances List.

U.S. Lafora patients can qualify for disability benefits faster through the Compassionate Allowances List. In fact, SSA says your application would be “moved to the front of the line.”

The SSA reported that Lafora is now one of 314 serious medical conditions on the list, and “since the initiative started, over 1.2 million people have been approved.” This action should speed up the process for Lafora families seeking disability benefits.

We hope this decision helps families around the world access similar government support. Chelsea’s Hope anticipates more funding opportunities for the Lafora disease community to advance research, potential treatments, and improve patient care. We are grateful that the SSA recognizes the urgency we face.