The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Chelsea’s Hope supports Purple Day 2024
/by Christine KellyIn unity with worldwide epilepsy advocates, Chelsea’s Hope has pledged its support for World Purple Day 2024. Epilepsy advocate Cassidy Megan founded the international initiative to raise awareness about epilepsy. Today, on March 26, people wear purple to show solidarity with those affected and support advocacy efforts. Approximately 50 million people live with epilepsy globally, […]
Five Interns to Join Chelsea’s Hope
/by Christine KellyChelsea’s Hope is delighted to announce we are expanding the team by hiring five interns through March and April. While the organization initially posted three opportunities, there were so many impressive candidates that the Board of Directors approved five internships. Chelsea’s Hope is expanding its capabilities to meet our goals and strategy by hiring interns […]
Rare Disease Day 2024 Press Release
/by Christine KellySHINING A LIGHT ON LAFORA DISEASE IN GAZA, GLOBALLY Chelsea’s Hope will raise awareness about Lafora on Rare Disease Day 2024. SACRAMENTO, Calif. – February 28, 2024 – Chelsea’s Hope Lafora Children Research Fund, a 501(c)(3) nonprofit organization, joins the global rare disease community to advocate for patients like 17-year-old Zaina in Gaza and raise […]
Volunteer Spotlight: Camilla Translated Six Lafora Disease Resources from English to Italian
/by Christine KellyChelsea’s Hope is grateful to announce that volunteer Camilla Bozzi has translated six Lafora Disease resources from English to Italian. The documents will help families access support, educational resources about Lafora, and updates on research. We had the pleasure of meeting Camilla at the 2023 Lafora Disease Science Symposium in Bologna. She applied to volunteer […]