Chelsea’s Hope is thrilled to announce we’ve just earned our 2023 Silver Seal from Candid! We are excited to share the work our nonprofit does through our Guidestar nonprofit profile. We want to ensure you have the progress updates you need to support our work with trust and confidence. Chelsea’s Hope is committed to our […]
About Christine Kelly
Christine joined Chelsea's Hope in June 2022 as a Marketing Fellow. In her current role as Communications and Development Director, she manages social media, the monthly newsletter, and the volunteer program. Christine also updates the website and would love to connect with you about sharing your story.
Entries by Christine Kelly
Meet the Board of Director’s Vice President, Jenifer Merriam Jenifer Merriam is a mother of two children, Anissa and Ty, affected with Lafora Disease. At her daughter’s diagnosis in 2016, she was told there were no treatments or cures. She left that appointment hopeless and not sure what to do. Jenifer began the isolating journey […]
The 8th Lafora Disease Science Symposium was held October 9-10th, 2023, in Bologna, Italy. It was the largest event yet, with more than 30 researchers, clinicians, and patient advocates gathered to share their expertise on Lafora Disease. The community joined worldwide to work toward improving treatment for Lafora patients. Thank you to all the attendees […]
Share how you #FightLafora on October 1, 2023, our third annual Lafora Body Disease Day, and raise awareness about Lafora Disease! Creating awareness is key to more research, better support, and a brighter future for our kids with Lafora Disease. Keep reading to find out how you can join in. We invite you to create […]
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834