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Chelsea's Hope2026-06-22 16:51:252026-06-22 17:25:51Meet our 2026 Summer Interns!
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Chelsea Gerber
1990-2016
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
Lafora patient
Adela Richer
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Kelsey Anne Harris
1995-2014
Fighting the Rare
A documentary about Lafora disease that features Chelsea’s Hope.
Living with Lafora
The Merriam family tells their story after a devastating diagnosis.
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Chelsea's Hope2026-06-22 16:51:252026-06-22 17:25:51Meet our 2026 Summer Interns!
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Chelsea's Hope2026-04-24 12:30:402026-06-22 15:43:18Updates for the Lafora Therapy Pipeline: Requesting information from our Research Community
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Chelsea's Hope2026-03-10 13:21:262026-03-10 13:21:49Telethon’s Statement on the ION283 Clinical Trial Pathway for LaforaPartners
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
