2023 Annual Letter

Below is Chelsea’s Hope annual progress update and appeal from our President, Frank Harris, Ph.D. If you did not receive a copy of the 2023 annual letter by email or direct mail, please email us. Then, we will get you set up for the future.

Read the Letter

Dear community, 

As we approach the end of another transformative year, we want to express our heartfelt gratitude for your unwavering support of Chelsea’s Hope. We have made significant strides toward our shared vision of a world with a cure for Lafora Disease. 

We are proud to share the progress we’ve achieved together in 2023. Your generosity has enabled us to expand our research network around the globe. Through the efforts of Chelsea’s Hope, Lafora Disease has been formally recognized by the International Classification of Diseases with an ICD-10 code. Chelsea’s Hope was awarded a grant in partnership with researchers at the University of Texas, Southwestern, and we co-hosted the 2023 Science Symposium. Chelsea’s Hope also started a Research Roundtables series, volunteer program, and sibling support program, all aligned with our mission of improving the lives of those affected by Lafora Disease.

The impact of your support is tangible: you have led us here. Your belief in our mission to help accelerate the development of treatments has fueled our determination despite the obstacles we’ve faced. There is still more we can achieve. 

We kindly ask for your continued support as we close out 2023. This year, Chelsea’s Hope is raising $20,000 by January 1, 2024, so we can continue expanding and maintaining a strong, collaborative, and actionable research network. By doing so, we will be closer to starting a clinical trial. 

Lafora Disease progresses quickly, and time is never on our side. We hope you will be. 

Your donation is more than a financial contribution. It is an investment in saving the lives of the hundreds of children and their families fighting this terrible disease.

We are so grateful to be able to count on you to help our children struggling today and to honor the legacy of those we lost. Thank you for being an essential part of our work. You are building a better future for all affected by Lafora Disease.

I wish you and your loved ones a joyous holiday season and a happy new year.

With Hope, 

 

 

 

Frank Harris, Ph.D. – President

Chelsea’s Hope Lafora Children Research Fund

info@chelseashope.org

Reach a Cure for Lafora Disease

Your support allows us to continue the vital work we do to reach a cure. This year-end, you can create your own fundraiser to help us reach our goal. Double your impact when you donate, because a generous community leader has offered a $10,000 match for every gift made before December 31, 2023.