Leadership Team

Founded by families facing Lafora disease, meet our Board of Directors, staff, and volunteers.

Board of Directors

</p> <div style="text-align:center;">Jenifer Merriam</div> <p>

Jenifer Merriam

President

</p> <div style="text-align:center;">Katrina Voe Cotton, MD PhD</div> <p>

Katrina Voe Cotton, MD PhD

Vice President

Finance Committee Chair
</p> <div style="text-align:center;">Sheila Barter</div> <p>

Sheila Barter

Treasurer

</p> <div style="text-align:center;">Meredith Williams</div> <p>

Meredith Williams

Secretary

Outreach Committee Chair
</p> <div style="text-align:center;">Nadia Ismail</div> <p>

Nadia Ismail

At-Large Member

Fundraising Committee Chair
</p> <div style="text-align:center;">Niki Markou</div> <p>

Niki Markou

At-Large Member

Family Support Committee Chair
</p> <div style="text-align:center;">Dr. Sean Hall</div> <p>

Dr. Sean Hall

At-Large Member

Chelsea’s Hope is also supported by an Advisory Board that meets twice yearly and offers guidance to the Board of Directors.

Meet the Advisory Board

Staff & Volunteers

</p> <div style="text-align:center;">Kit Donohue, PhD</div> <p>

Kit Donohue, PhD

Scientific and Executive Director

</p> <div style="text-align:center;">Kait Fedor</div> <p>

Kait Fedor

Grants Coordinator

</p> <div style="text-align:center;">Souad Messahel, PhD</div> <p>

Souad Messahel, PhD

Clinical Program Lead

</p> <div style="text-align:center;">Mariah Carlson</div> <p>

Mariah Carlson

Western University of Health Sciences

</p> <div style="text-align:center;">Sancia Milton</div> <p>

Sancia Milton

Duke University

</p> <div style="text-align:center;">Christine Kelly</div> <p>

Christine Kelly

Communications Director

What is Lafora Disease
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About the Organization