The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Board Secretary Announcement
/by Riley HawkinsMeet the newest member of Chelsea’s Hope: Board Secretary, Meredith Williams! Meredith Williams is a first-year graduate student in the Development, Disease Models, and Therapeutics Ph.D. program at Baylor College of Medicine in Houston, Texas. She earned two bachelor’s of science from the University of Kentucky, where she worked as an undergraduate research assistant in […]
Raise Awareness for Lafora Disease on Lafora Body Disease Day 2023
/by Christine KellyShare how you #FightLafora on October 1, 2023, our third annual Lafora Body Disease Day, and raise awareness about Lafora Disease! Creating awareness is key to more research, better support, and a brighter future for our kids with Lafora Disease. Keep reading to find out how you can join in. We invite you to create […]
Announcing ICD-10 Codes for Lafora Disease
/by Christine KellyWe are thrilled to announce that newly designated, unique ICD-10 Diagnostic Codes for Lafora Disease will be effective on October 1, 2023. Lafora progressive myoclonus epilepsy, or Lafora Disease, an ultra-rare neurodegenerative disorder affecting children, has been assigned code G40.C, falling under the G category of diseases representing nervous system disorders. This development marks a […]
Interested in a Sibling Support Group?
/by Christine Kelly