The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Our second annual #LaforaBodyDiseaseDay is October 1st, 2022
/by Niki MarkouAnissa with Lafora Disease: Sister Mariah talks about sibling survivors’ guilt For our second annual Lafora Body Disease Day this October 1st, 2022, we wanted to share the Merriam family story. Watch sibling Mariah Merriam talk about her challenges of being the only sibling without Lafora disease and the survivor’s guilt she feels watching her […]
OCTOBER 1 st MARKS THE 2 nd ANNUAL AWARENESS MISSION FOR LAFORA DISEASE
/by Christine KellyRegister for Symposium!
/by Christine KellyÉpilepsie-France Advocacy Song
/by Christine Kelly