The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
New Research on Gene Therapy and Lafora Disease
/by Christine KellyGene Therapy 101
/by Christine KellyQuestions about gene therapy and Lafora Disease? Access the easy-to-read guide Gene Therapy 101 today. If you want to read more about gene therapy, this is a good patient-friendly website. If you have more questions about gene therapy and Lafora Disease, please feel free to contact our Science Director, Dr. Kit Donohue, at katherine@chelseashope.org. Access […]
Patient Community Meet & Greet with New Science Director
/by Christine KellyPlease join our new Science Director, Dr. Kit Donohue, for a community meet-and-greet. As Kit steps into her new role, she would like to hear from you—the patient community! Kit has been fortunate to study in Dr. Matthew Gentry’s lab for the past five years, where she met and collaborated with many of the scientists […]
Vibe Bio Launches To Transform Drug Development For Patients With Rare Diseases
/by Niki MarkouMore information on new biotech company Vibe Bio and founder Alok Tayi helping Chelsea’s Hope and patients with rare disease by using crypto to support the development of treatments.