Anissa with Lafora Disease: Sister Mariah talks about sibling survivors’ guilt For our second annual Lafora Body Disease Day this October 1st, 2022, we wanted to share the Merriam family story. Watch sibling Mariah Merriam talk about her challenges of being the only sibling without Lafora disease and the survivor’s guilt she feels watching her […]
This author has yet to write their bio.Meanwhile lets just say that we are proud Markou contributed a whooping 12 entries.
Entries by Markou
More information on new biotech company Vibe Bio and founder Alok Tayi helping Chelsea’s Hope and patients with rare disease by using crypto to support the development of treatments.
Today, I’m thrilled to share that our community is growing as our partnership with Vibe Bio officially launches to form New Hope Therapeutics – our joint company dedicated to pursuing a treatment for Lafora disease. I first learned about Vibe Bio and its cofounder Alok Tayi through a mutual contact, and after hearing about Vibe […]
Jenifer Merriam and Niki Markou are courageous moms, serving on our Board of Directors. They share what it’s like to cope with a child’s suffering with a rare disease with no cure. These moms are working together to fund research for medical therapies and were recently awarded a Chan Zuckerberg Initiative Rare As One grant, […]
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834