Entries by Niki Markou

G-Tube Tips – A Mother’s Perspective

A Mother’s Perspective on the Benefits of a Feeding Tube for Lafora Disease Patients Has your child got a Gastrostomy tube, or have you been advised they will need it? It is a very daunting decision to make as you are still grieving from the devastating diagnosis and watching your child change so rapidly. Take […]

Our second annual #LaforaBodyDiseaseDay is October 1st, 2022

Anissa with Lafora Disease: Sister Mariah talks about sibling survivors’ guilt For our second annual Lafora Body Disease Day this October 1st, 2022, we wanted to share the Merriam family story. Watch sibling Mariah Merriam talk about her challenges of being the only sibling without Lafora disease and the survivor’s guilt she feels watching her […]

Vibe Bio and New Hope Therapeutics launch today

Today, I’m thrilled to share that our community is growing as our partnership with Vibe Bio officially launches to form New Hope Therapeutics – our joint company dedicated to pursuing a treatment for Lafora disease. I first learned about Vibe Bio and its cofounder Alok Tayi through a mutual contact, and after hearing about Vibe […]