Épilepsie-France Advocacy Song
We want to highlight some of the advocacy work by Épilepsie-France! They have created a song to demystify epilepsy for the public. It’s a tribute to Mathys Lucas, one of our Lafora heroes from France.
Pictured here are actor and comedian Frédéric Bouraly with Christophe Lucas, president of Épilepsie-France and bereaved father of Mathys, as well as children from the video.
Christophe Lucas shared that the music was composed by Gérard Gabbay, brother of the Vice President of Épilepsie-France. They worked for a year on the video and named it « La vie d’abord » (“Life First”) after the slogan of the organization.
An estimated 650,000 people in France have epilepsy and this song works to break misconceptions about seizures and living with epilepsy.
Chelsea’s Hope c/o Dr. Donohue
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