The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Announcing the Hybrid Lafora Disease Biomarker Workshop
/by Kit DonohueEmpowering Lafora Disease Research: Launch of Patient Mutation and Canine Databases
/by Christine KellyHear from Emilie Heller about the launch of two databases she worked on: “Hi everyone! My name is Emilie and I’ve just wrapped up my time at Chelsea’s Hope as the Research Network Development Intern. I’m excited to share about the launch of two Lafora databases. Patient Mutation Database Our new Patient Mutation Database is […]
The Latest Research in Lafora Disease – Summarized for Easy Reading
/by Maysoon HussainResearch Simplified for Families Interested in learning about the new research developments in Lafora disease in a concise and easy-to-read form? Keep reading for summaries of some of the latest published research in Lafora disease. Our goal is to make the research easier to read and understand for families. You’ll find the research simplified in […]
Reflecting on Progress: Explore Our Impact in the Chelsea’s Hope 2023 Annual Report
/by Christine Kelly