Epilepsy Day and SAP 2024

Chelsea’s Hope Supports Epilepsy Day and Seizure Action Plan Awareness Week 2024

Chelsea’s Hope proudly supported Epilepsy Day on Monday, February 12, 2024.

This International Epilepsy Day, we joined in raising awareness on social media, including sharing facts about Lafora progressive myoclonus epilepsy. For example…

Did you know? 

• Seizures in adolescence are one of the first symptoms of Lafora Disease.
• Lafora Disease is commonly misdiagnosed as Juvenile Myoclonic Epilepsy.
• Lafora Disease symptoms include recurrent, increasingly intractable seizures.
• Lafora Disease symptoms include muscle jerks and spasms, also called myoclonus.

We educated new audiences across platforms about Lafora Disease and will continue to do so beyond Epilepsy Day. Chelsea’s Hope believes raising awareness about Lafora will lead to better funding, support, and opportunities for all those affected by the rare epilepsy. We invite you to join and have resources available to help your advocacy efforts. 

Chelsea’s Hope also signed the Epilepsy Action Network letter to President Biden, requesting increased federal investment for epilepsy research.

Seizure Action Plan Awareness Week 2024

Epilepsy Day has kicked off seizure action plan (SAP) awareness week, February 12-19, 2024! Since Lafora symptoms include seizures, having a plan in place with tailored guidelines on how others can respond could create comfort and reduce complications in an emergency situation.

Educate and empower your family and friends to respond if your loved one has a seizure. It’s never too late to develop a SAP with your Lafora patient’s care team and healthcare provider! Visit https://seizureactionplans.org/ to get started. You can also join the SAP coalition in raising awareness through social media!