The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834
Lafora Documentary to Be Shown at San Francisco Film Festival
/by Frank HarrisDisorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. Most (but not all) of the films are documentaries. Many are less than 15 minutes. This year’s festival, scheduled for November 9th and 10th, will include Faces of Lafora, a documentary film by Denis Bojic. Faces of Lafora illustrates the heartbreaking impact that Lafora Disease has on patients and their families, as well as the efforts to find a cure for this horrible disease. Read more
Summary of 2019 Lafora Workshop
/by Frank HarrisSummary of 2019 Lafora Workshop
5th International Lafora Disease Workshop
/by Alan BarterThe 5th International Lafora Disease Workshop is scheduled for September 9-11, 2019 in Alcala Spain.
Please see attached for additional details.
2019 LD workshop
Important paper published today on advances in research …
/by Alan BarterNew paper titled, “Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion”, published today!
Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion
Brewer et al., Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion, Cell Metabolism (2019), https://doi.org/10.1016/j.cmet.2019.07.002