The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834
5th LECI workshop Paper
/by Alan Barter“The 5th International Lafora Epilepsy Workshop: Basic science elucidating therapeutic options and preparing for therapies in the clinic”
5th LECI workshop Paper
2019 Lafora Disease Spotlight – Thomas
/by Alan BarterThe following video was presented at the 5th International Lafora Epilepsy Workshop in Madrid: Chelsea’s Hope Lafora Disease Spotlight
Lafora Documentary to Be Shown at San Francisco Film Festival
/by Frank HarrisDisorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. Most (but not all) of the films are documentaries. Many are less than 15 minutes. This year’s festival, scheduled for November 9th and 10th, will include Faces of Lafora, a documentary film by Denis Bojic. Faces of Lafora illustrates the heartbreaking impact that Lafora Disease has on patients and their families, as well as the efforts to find a cure for this horrible disease. Read more
Summary of 2019 Lafora Workshop
/by Frank HarrisSummary of 2019 Lafora Workshop