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This is the Platinum Seal of Transparency from Candid. It has a platinum border, white square center, and text that says 'Platinum Transparency 2025 Candid.'

Chelsea’s Hope Earns Platinum Seal of Transparency for 2025

February 18, 2025/by Christine Kelly

This is the Platinum Seal of Transparency from Candid. It has a platinum border, white square center, and text that says 'Platinum Transparency 2025 Candid.'Chelsea’s Hope is excited to announce we’ve just earned a Platinum Seal of Transparency from Candid for 2025!

We invite you to check out our nonprofit’s work through our Candid nonprofit profile; where you can view our impact.

We rely on our profile to gather support; it enables funders and donors to find us and learn about our impact. We’ll keep our profile updated so you can see what your donations help us accomplish. Recently, we shared information about our mission, programs, results, financials, and operations.

Chelsea’s Hope wants to ensure you have the progress updates you need to support our mission with trust and confidence. Your contributions make a real difference. You can donate knowing our commitment to operating with the highest level of transparency, as evidenced by our achievement of the Platinum Seal for 2025.

What’s next? 

In 2025, we plan to host three more Research Roundtables and support the Lafora Disease Science Symposium. We must fully fund the safety study to enroll all the eligible patients, too. As always, we will champion the amazing Lafora community and take every step forward to treatments for our children. Finally, you can look forward to monthly family support groups.

Thank you for your belief in our cause!

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https://chelseashope.org/wp-content/uploads/2025/02/candid-seal-platinum-facebook-2025.png 1016 1016 Christine Kelly https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Christine Kelly2025-02-18 12:35:042025-02-18 12:35:04Chelsea’s Hope Earns Platinum Seal of Transparency for 2025
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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

  • New Resource: Lafora Anti-Seizure Medication Guidelines

  • Join in Lafora Body Disease Day 2026!

  • Lafora Therapy Q&A Resources

  • Student Ambassador Applications Open

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  • Elpida Therapeutics’ Press Release

  • ION283 to be Developed by Elpida Therapeutics

  • Update on the ION283 Program from Telethon

  • Introducing the Lafora Clinical Network Registry

  • Meet our 2026 Summer Interns!

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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Link to: Chelsea’s Hope Welcomes 2025-2026 Board of Directors Link to: Chelsea’s Hope Welcomes 2025-2026 Board of Directors Chelsea’s Hope Welcomes 2025-2026 Board of Directors20252-2026 Welcoming a New Board of Directors Katrina Voe Cotton Vice President Roderick Howard At-Large Member Link to: Safety Study Update – February 2025 Link to: Safety Study Update – February 2025 ION238 Safety Study Update February 2025Safety Study Update – February 2025
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