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About Alan Barter

This author has not written his bio yet.
But we are proud to say that Alan Barter contributed 7 entries already.

Entries by Alan Barter

Update on 2021 LD Meeting

May 4, 2021/by Alan Barter

Due to continued COVID restrictions, the July 2021 LD meeting has been rescheduled for September 20th – 21st, 2021 at the Sanford Consortium for Regenerative Medicine in La Jolla, CA. The meeting will be both in person and available on-line. Presentations will begin in the early afternoon on September 20th with an update regarding current […]

Calling all People and Caregivers in the Lafora Disease Community: We need your help!

January 31, 2021/by Alan Barter

Take a survey to help better understand what it’s like living with Lafora disease (LD) and to help guide development of new potential LD therapies. Learn more here: Calling All People and Caregivers

A Special Song for Angelina

January 31, 2021/by Alan Barter

Just Like A Butterfly by Niki Markou “Just Like A Butterfly” Audio Release Date: February 10th, 2021, available on multiple digital music platforms like Spotify, Apple Music & TikTok. We ask that you stream the song and also make a donation! Help save our children. “This journey has been extremely difficult and devastating and we […]

5th LECI workshop Paper

March 9, 2020/by Alan Barter

“The 5th International Lafora Epilepsy Workshop: Basic science elucidating therapeutic options and preparing for therapies in the clinic” 5th LECI workshop Paper

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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

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The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

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Use ICD-10 code G40.C for Lafora.

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