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20252-2026 Welcoming a New Board of Directors Katrina Voe Cotton Vice President Roderick Howard At-Large Member

Chelsea’s Hope Welcomes 2025-2026 Board of Directors

January 28, 2025/by Christine Kelly

Chelsea’s Hope is pleased to announce the 2025-2026 Board of Directors: Jenifer Merriam (President), Dr. Katrina Voe Cotton (Vice President), Sheila Barter (Treasurer), Meredith Williams (Secretary), Niki Markou (At-Large Member), Roderick Howard (At-Large Member), and Nadia Ismail (At-Large Member).

New to Chelsea’s Hope are Vice President Katrina Voe Cotton, MD, PhD, and At-Large Board Member Roderick Howard.

Headshot of Katrina Voe Cotton, MD PhD

Dr. Katrina Voe Cotton, Vice President

Dr. Cotton shared, “I feel incredibly fortunate to have joined the Lafora community at such an exciting time. With the safety study now underway at UT Southwestern, we are on the brink of a new era for Lafora patients. I’m eager to leverage my experience and knowledge to help navigate this exciting journey ahead.”

Headshot of Roderick Howard

Roderick Howard, At-Large Member

Roderick, a longtime nonprofit leader, also said, “I am grateful for the opportunity to serve an organization that aligns with my interests in public health and children’s support.”

Dr. Cotton and Roderick bring a wealth of management and development skills along with a passion for making a difference in the Lafora community. We look forward to their guidance and expertise in advancing the mission of Chelsea’s Hope. You can read more about the Board of Directors on our Leadership Team page. 

Finally, we want to express our heartfelt gratitude to Dr. Frank Harris for his leadership as the previous President of the Board of Directors. He had a talent for making newly diagnosed families feel supported and devoted a decade to serving the Lafora community with Chelsea’s Hope. Many of our current board members credit Frank for welcoming them to the organization and encouraging them to join. While he stepped down from the board, he remains a steadfast member of our community.

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https://chelseashope.org/wp-content/uploads/2025/01/2025-Board-Announcement-Featured-Image.png 1256 2400 Christine Kelly https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Christine Kelly2025-01-28 13:35:212025-01-28 13:36:37Chelsea’s Hope Welcomes 2025-2026 Board of Directors
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Five members of the Chelsea's Hope Board of Directors smiling and standing together. Apply to Join the Board of Directors!
2025 Chelsea's Hope Lafora Children Research Fund Annual Report info@chelseashope.org www.chelseashope.org 2025 Annual Report 2025 Annual Report

About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

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The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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