The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
The 3rd International Lafora Workshop: Evidence for a Cure (September 2017)
/by Frank Harris2017 LECI workshop summary by Matt Gentry
ASMB Today: Passionate Parents Catalyze Research – May 2017
/by Frank HarrisFeature _ Passionate parents catalyze research
University of Kentucky Researcher Leads International Epilepsy Cure Initiative – Aug. 9, 2016
/by Frank HarrisUK Press Release
Cure Lafora Epilepsy Meeting in Istanbul – Sep. 6, 2015
/by Frank HarrisIstanbul Meeting Report – Escueta