The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Director of Family Support Announcement
/by Christine KellyChelsea’s Hope Welcomes First Director of Family Support We are thrilled to announce our first Director of Family Support is Niki Markou. She will be responsible for helping to successfully plan, implement, and continually improve Chelsea’s Hope’s support, registry coordination, and patient community support programs. We created this new role to better serve our mission […]
Rare Genomes Project
/by Christine KellyLafora In The News
/by Riley HawkinsThroughout the last month or so, Chelsea’s Hope and Lafora disease have been in the news quite a few times. Keep reading to learn about and find links to each one! Articles Rare Classroom: Lafora Disease Patient Worthy James Moore July 28, 2023 In Patient Worthy’s new series about rare disease education, James Moore details […]
2023 Symposium Registration is Open Now!
/by Christine KellyWe are delighted to announce that the 2023 Symposium registration is open now. Please join us October 9-10, 2023, in the beautiful and historic city of Bologna. Lafora disease researchers and clinicians at the Instituto delle Scienze Neurologiche di Bologna IRCCS will host the 8th Annual Lafora Disease Science Symposium at the Relais Bellaria. You can […]