The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
June Research Roundtable Registration
/by Christine KellyLafora Disease Science Terms 101
/by Christine KellyWe’ve just published the helpful PDF filled with Lafora Disease Science Terms that you can download for your own use or to share. Our community benefits from a number of dedicated research champions who work alongside our families to find a cure for this devastating disease. There is a lot that we can learn about […]
First Lafora Disease Research Roundtable
/by Christine KellyPlease join us for our first Lafora Disease Research Roundtable! When? It will be Thursday, April 27th, 10:30 am – 12:00 pm EST. Where? The Roundtable will be virtual. You can register to attend via Zoom! We’ll bring together Lafora Disease and Adult Polyglucosan Body Disease researchers around a common goal: reducing glycogen aggregation in […]
Chelsea’s Hope Started a Volunteer Program
/by Christine Kelly