Entries by Christine Kelly

Giovanna’s Story

/by

Giovanna Monda has three children affected by Lafora disease. Christian, the oldest, passed in 2021. Then, Tracy and Carmen were diagnosed with Lafora disease in 2022. Giovanna shares her family’s story below. Select the toggle to read the original version in Italian or an edited version in English. Every bit will directly help her family. […]

Announcing February Research Roundtable Speakers

/by

Dr. Mitra and Jeff Milton to Join Chelsea’s Hope Lafora Disease Research Roundtable on 8 February We are excited to announce the two speakers that will present at our February research roundtable. Sharmistha Mitra, Ph.D., is an Instructor in the Department of Pediatrics, Division of Child Neurology at UT Southwestern Medical Center. She joined the UT […]

Help Lafora Patient Zaina and Family Evacuate Gaza

/by

Lafora patient Zaina and her family want to evacuate Gaza; donate to their GoFundMe today. A 17-year-old from Gaza City has Lafora Disease. Her entire family has been bombed, and they evacuated their home. They have moved across Gaza several times to escape the fighting. They have been displaced into a shelter and ran out […]

2023 Annual Letter

/by

Below is Chelsea’s Hope annual progress update and appeal from our President, Frank Harris, Ph.D. If you did not receive a copy of the 2023 annual letter by email or direct mail, please email us. Then, we will get you set up for the future. Read the Letter Dear community,  As we approach the end […]