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About Christine Kelly

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Entries by Christine Kelly

Announcing ICD-10 Codes for Lafora Disease

September 22, 2023/by Christine Kelly

We are thrilled to announce that newly designated, unique ICD-10 Diagnostic Codes for Lafora Disease will be effective on October 1, 2023. Lafora progressive myoclonus epilepsy, or Lafora Disease, an ultra-rare neurodegenerative disorder affecting children, has been assigned code G40.C, falling under the G category of diseases representing nervous system disorders.  This development marks a […]

Interested in a Sibling Support Group?

September 13, 2023/by Christine Kelly

Lafora Disease Therapeutic Overview

September 8, 2023/by Christine Kelly

Childhood Dementia Webinars

August 23, 2023/by Christine Kelly

Our friends at Childhood Dementia Initiative are hosting three childhood dementia webinars we want to let you know about! 1. Childhood Dementia Introduction Tuesday, 5th September 2023 from 10:30 – 11:30 pm EST 2. Accessing Emerging Treatments for Childhood Dementia Thursday, 7th September from 6 – 6:45 pm EST 3. We Don’t Fit Report Tuesday, […]

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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

  • New Resource: Lafora Anti-Seizure Medication Guidelines

  • Join in Lafora Body Disease Day 2026!

  • Lafora Therapy Q&A Resources

  • Student Ambassador Applications Open

  • Social Security Added Lafora to Compassionate Allowances List

  • Elpida Therapeutics’ Press Release

  • ION283 to be Developed by Elpida Therapeutics

  • Update on the ION283 Program from Telethon

  • Introducing the Lafora Clinical Network Registry

  • Meet our 2026 Summer Interns!

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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