Entries by Christine Kelly

Rare Disease Day 2024 Press Release

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SHINING A LIGHT ON LAFORA DISEASE IN GAZA, GLOBALLY Chelsea’s Hope will raise awareness about Lafora on Rare Disease Day 2024. SACRAMENTO, Calif. – February 28, 2024 – Chelsea’s Hope Lafora Children Research Fund, a 501(c)(3) nonprofit organization, joins the global rare disease community to advocate for patients like 17-year-old Zaina in Gaza and raise […]

Volunteer Spotlight: Camilla Translated Six Lafora Disease Resources from English to Italian

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Chelsea’s Hope is grateful to announce that volunteer Camilla Bozzi has translated six Lafora Disease resources from English to Italian. The documents will help families access support, educational resources about Lafora, and updates on research. We had the pleasure of meeting Camilla at the 2023 Lafora Disease Science Symposium in Bologna. She applied to volunteer […]

Chelsea’s Hope Earns 2024 Platinum Seal of Transparency

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Chelsea’s Hope is thrilled to announce we’ve just earned a Platinum Seal of Transparency from Candid for 2024! We are excited to share the work our nonprofit does through our Candid nonprofit profile, and we invite you to view it and keep up to date with our impact. We shared information about our mission, programs, […]

Epilepsy Day and SAP 2024

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Chelsea’s Hope Supports Epilepsy Day and Seizure Action Plan Awareness Week 2024 Chelsea’s Hope proudly supported Epilepsy Day on Monday, February 12, 2024. This International Epilepsy Day, we joined in raising awareness on social media, including sharing facts about Lafora progressive myoclonus epilepsy. For example… Did you know?  Seizures in adolescence are one of the […]