About the Organization
Chelsea’s Hope (ChelseasHope.org) began in the fall of 2007 as a means to share Chelsea Gerber’s story with family and friends. This is was two years after she was diagnosed with Lafora disease at the age of 14. Through this website, the Gerber family has been able to help raise awareness about disease, connect with other Lafora families, and to help fund research to try to find a cure.
In September 2009, Chelsea’s Hope Lafora Children Research Fund became an IRS 501(c)3 non-profit organization. Nonprofit Public Benefit California Corporation EIN: 27-1008382.
Chelsea’s Hope is a member of the Rare Epilepsy Network (REN).