About the Organization

Chelsea’s Hope (ChelseasHope.org) began in the fall of 2007 as a means to share Chelsea Gerber’s story with family and friends. This is was two years after she was diagnosed with Lafora disease at the age of 14. Through this website, the Gerber family has been able to help raise awareness about disease, connect with other Lafora families, and to help fund research to try to find a cure.

In September 2009, Chelsea’s Hope Lafora Children Research Fund became an IRS 501(c)3 non-profit organization. Nonprofit Public Benefit California Corporation EIN: 27-1008382.

Chelsea’s Hope is a member of the Rare Epilepsy Network (REN).

The Mission

To raise funds for research, treatment, and ultimately, a cure — for those affected by Lafora. This requires raising awareness about Lafora and the children it afflicts. Chelsea’s Hope is also here to provide connection and assistance for families in the form of education, emotional support and general assistance.

“Together, we can maintain hope” – Linda Gerber

The Challenge

Lafora Disease research little to no funding from the Federal Government. This is due in part to Lafora’s classification as an orphan disease (a condition that affects fewer than 200,000 people nationwide). The other challenge is funding for Lafora research is in competition with more than 7,000 other orphan diseases. There simply isn’t enough funding to go around. Our hope is that by raising awareness about Lafora disease, we can dramatically increase the funding for research needed to find a cure.

We invite you to read Chelsea’s story and to meet the other Children of Chelsea’s Hope. Then, please donate as much as you can to help stop this deadly disease.

What is Lafora Disease
Read Chelsea's Story
Donate to Lafora Research