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Did you know that you can now donate to Chelsea’s Hope with PayPal?
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We’re part of the @ChanZuckerbergInitiative’s #RareAsOne Network
A group of 50 patient-led organizations that are strengthening rare disease communities, improving diagnosis, accelerating research and driving progress in the fight against rare diseases.
Patients are a powerful force in driving research for rare disease — we provide critical insights about our diseases and are fueling significant discoveries.
7,000 rare diseases, one community fighting for cures.
Rare Mamas Rising Feature
One of our rare mamas, Niki Markou has been featured on the Rare Mamas website that is empowering rare disease moms. Rare Mamas contains blogs, podcasts and resources by rare disease mom founder, Nikki McIntosh who is a writer, speaker and advocate for mamas who care for children with rare disease. “It was an honor to be featured on her page.” said Niki Markou who is one of our Chelsea’s Hope board members
To read the article go to https://raremamas.com/just-like-a-butterfly-by-niki-markou/
About Chelsea’s Hope
The mission of Chelsea’s Hope is to raise funds for research, treatment, and ultimately, a cure for those affected by Lafora Disease.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization.
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834
949-812-8823 – Frank Harris (President)
