• Link to X
  • Link to Facebook
  • Link to Instagram
  • Link to LinkedIn
  • Link to Youtube
  • Donate to fight Lafora disease!
  • Contact Us
Chelsea's Hope Lafora Children Research Fund
  • What is Lafora Disease?
    • About Lafora Disease
    • ICD-10 Codes for Lafora Disease
    • Lafora Disease Symptom Checker
    • Family Stories
  • About Us
    • Chelsea’s Story
    • Leadership Team
    • Advisory Board
    • Contact
  • News
  • Resources
    • For Families & Caregivers
      • Newly Diagnosed
      • Tips for Lafora Disease Families
      • Bereavement Support
      • Patient Contact Form
      • G-Tube Tips – A Mother’s Perspective
    • For Researchers
      • Lafora Mutations Database
      • Lafora Canine Registry and Database
    • Scientific Articles
  • Get Involved
    • Ways to Give
    • Volunteer
    • Events
      • 2025 Lafora Science Symposium
      • Lafora Disease Research Roundtables
    • Raise Awareness
    • Join Canine Registry
  • ION283 Safety Study
  • Click to open the search input field Click to open the search input field Search
  • Menu Menu

The 3rd International Lafora Workshop: Evidence for a Cure (September 2017)

August 6, 2018/by Frank Harris

2017 LECI workshop summary by Matt Gentry

https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Frank Harris https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Frank Harris2018-08-06 10:15:102018-08-06 10:15:10The 3rd International Lafora Workshop: Evidence for a Cure (September 2017)

ASMB Today: Passionate Parents Catalyze Research – May 2017

August 6, 2018/by Frank Harris

Feature _ Passionate parents catalyze research

https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Frank Harris https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Frank Harris2018-08-06 10:08:042018-08-06 10:08:49ASMB Today: Passionate Parents Catalyze Research – May 2017

University of Kentucky Researcher Leads International Epilepsy Cure Initiative – Aug. 9, 2016

August 6, 2018/by Frank Harris

UK Press Release

https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Frank Harris https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Frank Harris2018-08-06 09:55:422018-08-06 10:04:08University of Kentucky Researcher Leads International Epilepsy Cure Initiative – Aug. 9, 2016

Cure Lafora Epilepsy Meeting in Istanbul – Sep. 6, 2015

August 6, 2018/by Frank Harris

Istanbul Meeting Report – Escueta

https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Frank Harris https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Frank Harris2018-08-06 09:53:122018-08-06 09:58:41Cure Lafora Epilepsy Meeting in Istanbul – Sep. 6, 2015
Page 30 of 34«‹2829303132›»

About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope. Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

Donate to Lafora Research

Latest News

  • Announcing Lafora Therapy Town Hall

  • FACE It to Raise Awareness of Childhood Dementia

  • Invitation to Join Listening Sessions

  • Noventia’s Reply to Lafora Patient Community

  • Open Letter to Noventia

  • New Team Members Join Chelsea’s Hope for the Summer

  • Announcing June 18th ION283 Q&A: What’s Next?

  • Chelsea’s Hope Advisory Board Meets to Discuss Research Goals

  • Announcing a Town Hall: Fully Funding the Safety Study

  • Read 2024 Impact in our Annual Report

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

    • Follow us on
    • Facebook
    • Instagram
    • Twitter
    • LinkedIn
    • YouTube
    • TikTok
Charity Navigator Four-Star 2025
ION283 Safety Study
Copyright © 2017-2025 Chelsea's Hope Lafora Children Research Fund. All Rights Reserved.
  • Privacy Policy – Other Policies
  • Home
  • About Lafora Disease
  • Donate
  • Contact
  • News
Scroll to top Scroll to top Scroll to top