Entries by Chelsea's Hope

Meet our 2026 Summer Interns!

/by

We are thrilled to welcome 16 new interns this summer, supporting the mission through fundraising, creating resources, new webpages, and supporting research and clinical activities. With backgrounds from pre-med tracks at their schools to studying public health, they are bringing us valuable assistance to drive many projects forward. Keep reading to meet the new team […]

Telethon’s Statement on the ION283 Clinical Trial Pathway for Lafora

/by

Fondazione Telethon has kindly provided Chelsea’s Hope and the other advocacy organizations with a statement for the Lafora patient community. At their request, we are sharing the communication below: Dear Members of the International Lafora Patient Community, Fondazione Telethon remains open to contributing to the development of ION283 and to collaborating with partners in Europe […]

2025 Annual Report

/by

Chelsea’s Hope published our 2025 Annual Report! Inside, you’ll find a message from the President of the Board of Directors, Jenifer Merriam, and a summary of our impact in 2025. We also include a financial statement, goals for 2026 and beyond, and acknowledgments. Thank you to our generous donors, committed research network, and courageous families […]