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Chelsea’s Hope Announces Launch of Advisory Board

October 16, 2024/by Christine Kelly

As announced during our 15-year celebratory dinner, Chelsea’s Hope is pleased to share the launch of our Advisory Board.

Chelsea’s Hope has a dedicated Board of Directors, staff, and volunteers who work to execute our mission. To accelerate our path to treatment and expand our capacity to serve families with Lafora, the Board nominated 11 champions in the fields of basic science research, clinical care, and regulatory expertise to provide advice and guidance as we work toward the common goal of a cure for Lafora. We are pleased to share that all 11 nominees have agreed to serve as members of the Advisory Board.

Chelsea's Hope Advisory Board standing in front of a screen

The first Chelsea’s Hope Advisory Board meeting was on September 25th, 2024.

Please join us in celebrating our inaugural Advisory Board: Dr. Pascual Sanz (Valencia Institute of Biomedicine, CSIC), Dr. Souad Messahel (Elpida Therapeutics), Dr. Jose Serratosa (Fundacion Jimenez Diaz University Hospital), Dr. Jordi Duran (IQS Barcelona – Universitat Ramon Llull), Dr. Roberto Michelucci (IRCCS Istituto delle Scienze Neurologiche di Bologna), Dr. Francesca Bisulli (University of Bologna), Dr. Matthew Gentry (University of Florida), Dr. Antonio Delgado-Escueta (David Geffen School of Medicine at UCLA), Dr. Viet Nguyen (Chapman University), Dr. Berge Minassian (UT Southwestern Medical Center), and Mr. Jeff Milton (La Jolla Labs).

The Advisory Board will meet twice yearly and offer guidance and support to the Chelsea’s Hope Board of Directors. We appreciate their advice on our programs, fundraising, and events. 

The inaugural Advisory Board meeting was held on September 25th after our 2024 Symposium. We look forward to these experts’ impact as they work more closely with our organization and advance our mission.

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https://chelseashope.org/wp-content/uploads/2024/10/Advisory-Board-News-Post-Featured-Image.png 628 1200 Christine Kelly https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Christine Kelly2024-10-16 08:02:342024-10-16 08:43:18Chelsea’s Hope Announces Launch of Advisory Board
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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

Donate to Lafora Research

Latest News

  • Press Release: United Against Lafora, Families Worldwide Raise Awareness

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  • Elpida Therapeutics’ Press Release

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The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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