Entries by Christine Kelly

Lafora Disease Science Terms 101

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We’ve just published the helpful PDF filled with Lafora Disease Science Terms that you can download for your own use or to share. Our community benefits from a number of dedicated research champions who work alongside our families to find a cure for this devastating disease. There is a lot that we can learn about […]

First Lafora Disease Research Roundtable

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Please join us for our first Lafora Disease Research Roundtable! When? It will be Thursday, April 27th, 10:30 am – 12:00 pm EST. Where? The Roundtable will be virtual. You can register to attend via Zoom! We’ll bring together Lafora Disease and Adult Polyglucosan Body Disease researchers around a common goal: reducing glycogen aggregation in […]