Entries by Christine Kelly

Ask the Experts: A Q&A Session for Lafora Families

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Families, do you have questions about therapies and treatment for Lafora Disease? You have a chance to ask the experts! You’re invited… EVENT: Ask the Experts: A Q&A Session for Lafora Families DATE: Monday, August 28, 2023 from 3-4:30 pm EST LOCATION: Zoom. Please register for the meeting link. Keep reading for more details about […]

Director of Family Support Announcement

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Chelsea’s Hope Welcomes First Director of Family Support We are thrilled to announce our first Director of Family Support is Niki Markou. She will be responsible for helping to successfully plan, implement, and continually improve Chelsea’s Hope’s support, registry coordination, and patient community support programs. We created this new role to better serve our mission […]

2023 Symposium Registration is Open Now!

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We are delighted to announce that the 2023 Symposium registration is open now. Please join us October 9-10, 2023, in the beautiful and historic city of Bologna. Lafora disease researchers and clinicians at the Instituto delle Scienze Neurologiche di Bologna IRCCS will host the 8th Annual Lafora Disease Science Symposium at the Relais Bellaria. You can […]