Entries by Christine Kelly

Childhood Dementia Webinars

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Our friends at Childhood Dementia Initiative are hosting three childhood dementia webinars we want to let you know about! 1. Childhood Dementia Introduction Tuesday, 5th September 2023 from 10:30 – 11:30 pm EST 2. Accessing Emerging Treatments for Childhood Dementia Thursday, 7th September from 6 – 6:45 pm EST 3. We Don’t Fit Report Tuesday, […]

Ask the Experts: A Q&A Session for Lafora Families

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Families, do you have questions about therapies and treatment for Lafora Disease? You have a chance to ask the experts! You’re invited… EVENT: Ask the Experts: A Q&A Session for Lafora Families DATE: Monday, August 28, 2023 from 3-4:30 pm EST LOCATION: Zoom. Please register for the meeting link. Keep reading for more details about […]

Director of Family Support Announcement

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Chelsea’s Hope Welcomes First Director of Family Support We are thrilled to announce our first Director of Family Support is Niki Markou. She will be responsible for helping to successfully plan, implement, and continually improve Chelsea’s Hope’s support, registry coordination, and patient community support programs. We created this new role to better serve our mission […]