Entries by Christine Kelly

2023 Annual Letter

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Below is Chelsea’s Hope annual progress update and appeal from our President, Frank Harris, Ph.D. If you did not receive a copy of the 2023 annual letter by email or direct mail, please email us. Then, we will get you set up for the future. Read the Letter Dear community,  As we approach the end […]

Chelsea’s Hope Earns 2023 Silver Seal

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Chelsea’s Hope is thrilled to announce we’ve just earned our 2023 Silver Seal from Candid! We are excited to share the work our nonprofit does through our Guidestar nonprofit profile. We want to ensure you have the progress updates you need to support our work with trust and confidence. Chelsea’s Hope is committed to our […]

Announcing Vice President Jenifer Merriam

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Meet the Board of Director’s Vice President, Jenifer Merriam Jenifer Merriam is a mother of two children, Anissa and Ty, affected with Lafora Disease. At her daughter’s diagnosis in 2016, she was told there were no treatments or cures. She left that appointment hopeless and not sure what to do. Jenifer began the isolating journey […]

Lafora Symposium 2023 in review

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The 8th Lafora Disease Science Symposium was held October 9-10th, 2023, in Bologna, Italy. It was the largest event yet, with more than 30 researchers, clinicians, and patient advocates gathered to share their expertise on Lafora Disease. The community joined worldwide to work toward improving treatment for Lafora patients. Thank you to all the attendees […]