Tag Archive for: meet the team

Meet our 2026 Summer Interns!

We are thrilled to welcome 16 new interns this summer, supporting the mission through fundraising, creating resources, new webpages, and supporting research and clinical activities.

With backgrounds from pre-med tracks at their schools to studying public health, they are bringing us valuable assistance to drive many projects forward. Keep reading to meet the new team members!

Clinical Support Interns

Amrita PannuAmrita Pannu graduated from the University of California, Berkeley, with a BA in Immunology and a minor in Health and Wellness in May of 2024. She is deeply passionate about community work and is excited to raise awareness for Lafora patients and their families with her work on the Caregiver Support Survey. In addition, she is excited to use her experience in patient advocacy to educate families about Lafora’s ICD-10 code and its significance for not only patients in the healthcare system, but also as a path towards a cure.

Arianna RuizArianna Ruiz is a student at the University of Maryland, College Park, majoring in Public Health Science on the pre-medicine track. Originally from Glen Burnie, Maryland, she is passionate about improving healthcare access and advancing health equity, particularly for individuals living with rare diseases. Her interest in rare disease advocacy and research stems from her own experience living with Type 1 diabetes, which has given her firsthand insight into the challenges patients face when navigating complex healthcare systems. Through her internship with Chelsea’s Hope, Arianna is excited to contribute to efforts that expand research collaboration, strengthen connections between clinicians and families, and make care and resources for individuals affected by Lafora disease more accessible and equitable. She hopes to pursue a career in medicine focused on improving patient outcomes and reducing barriers to care.

Kun YanKun Yan is a rising senior studying Biology at Boston University with interests in translational medicine, patient-centered care, and rare disease advocacy. Through her clinical volunteering experiences and nephrology research at Boston Medical Center, she has developed a strong passion for bridging scientific research with compassionate healthcare. Outside of academics, Kun enjoys writing, swimming, fitness, and community outreach. She is excited to support the Lafora community by contributing to patient advocacy, educational initiatives, and ongoing efforts to improve treatments and advance research toward a cure.

Sonia WooSonia Woo is a rising sophomore studying Public Health and the Writing Seminars at Johns Hopkins University. She is passionate about rare disease advocacy, patient and family education, and health equity. Sonia is working on supporting the clinical network.

Soomin KimSoomin Kim is a rising junior at Johns Hopkins University studying Molecular and Cellular Biology and Psychology. She is passionate about the intersection of science and public health, and hopes to contribute through research and rare disease advocacy for underserved communities. Soomin aspires to learn more about bridging systemic gaps in healthcare access and accelerating treatments for rare disease patients through research.

Communications Interns

Danika Smidt​​Danika Smidt is a rising senior at the University of Colorado Boulder pursuing a BS in Molecular, Cellular, and Developmental Biology with minors in Biochemistry, Public Health, and Sociology. Outside of class, she is an active member of the Golden Buffalo Marching Band, serves as the VP of Finance for the Women’s Network, and is an ambassador for Morgan’s Message. Passionate about raising awareness on Lafora disease through social media, she is excited to start a new chapter and be a part of Chelsea’s Hope.

Deveny Gilmore​​Deveny Gilmore is a third-year genetics major at the University of Georgia on a pre-genetic counselor track. She is passionate about helping families find answers and understand their medical diagnoses. Deveny is creating infographics and resources for caregiver support, assisting with the recently launched Courage in Care program.

Jeanine AbedelalJeanine Abedelal is majoring in Communication Sciences and Disorders on a pre–Speech-Language Pathology and healthcare track at Northwestern University. She has a strong interest in pediatric care, neurodivergence, and rare disease advocacy. Jeanine was awarded a School of Communication Internship Grant through Northwestern University to support her work this summer. She is excited about the opportunity to contribute to Chelsea’s Hope and work toward advancing research and advocacy for Lafora disease.

Josie MilnerJosie Milner is majoring in Public Health with a minor in Business Administration at the University of Washington in Seattle. She is passionate about health education, community outreach, and creating accessible resources that help improve public health awareness.

 

Qianna Dudsic​​Qianna Dudsic studies molecular biology at the University of Washington. In her spare time, she enjoys reading, hiking, and listening to music. She is dedicated to making a meaningful impact in the Lafora community by bringing awareness to Lafora disease and raising support for the development of new treatments and a potential cure. She is excited to join Chelsea’s Hope and contribute to its mission.

Fundraising Support Interns

Isabella Connolly​​Isabella Connolly is a rising senior at the University of Maryland, where she is pursuing a Bachelor of Science in Global Health. In her free time, Isabella enjoys reading and spending time at the beach. Her passion for public health has inspired her interest in learning more about rare diseases and advocacy efforts. Through her role at Chelsea’s Hope, she hopes to contribute to the Lafora community by supporting fundraising initiatives and raising awareness about the disease.

Sereen Musleh​​Sereen Musleh is studying health science as a Pre-PA student based in Chicago, Illinois. She has a strong interest in neurology and previously worked as a pharmacy technician. Sereen recently earned her phlebotomy certification and is passionate about patient care as well as healthcare education. In her free time, Sereen enjoys baking and spending time outdoors.

Research Support Interns

Adaku IwudikeAdaku Iwudike is a Banneker Key Scholar studying Bioengineering at the University of Maryland, College Park. Adaku is passionate about advancing research for rare and chronic illnesses because she believes everyone deserves clarity about their health. Through this work, Adaku hopes to contribute to a future where technology advances our ability to understand disease earlier, provide clearer answers, and improve the lives of patients and families.

Anson ChauAnson Chau is a rising junior at UC Berkeley studying Integrative Biology and Public Health with a deep interest in chronic illnesses and education. He is excited to work with Chelsea’s Hope this summer to advocate for individuals and families affected by Lafora disease. Through this internship, Anson hopes to gain more hands-on research skills by contributing to the team and supporting our research roadmap project.

 

Elizabeth WildingElizabeth Wilding recently earned her Master of Public Health from the University of Virginia, where she focused on epidemiology, health data analysis, and public health research. Through her internship with Chelsea’s Hope, she looks forward to supporting the Lafora Research Network by contributing to research coordination, data analysis, and efforts to advance understanding of Lafora disease and improve outcomes for affected individuals and families.

 

Sara Ghoddoussi

​Sara Ghoddoussi graduated with her Bachelor of Science in Neuroscience from Wayne State University, with dual minors in Economics and Public Health. In the fall, she will begin pursuing a Master of Public Health in Health Behavior and Health Equity, along with a certificate in Public Health Genetics, at the University of Michigan. Sara is passionate about genetics, rare disease advocacy, community engagement, and improving access to health education.

Interns United for our Mission

Our summer team members are committed to improving the lives of those affected by Lafora disease and helping accelerate the development of treatments. Please join us in welcoming everyone as they assist with projects this summer, and don’t hesitate to contact us if you have any questions.

 

New Team Members Join Chelsea’s Hope for the Summer

We are thrilled to introduce nine new team members who will be joining us this summer. Chelsea’s Hope was amazed when we had more than 500 applications for our 2025 internship program. As the organization seeks to expand its capabilities to achieve our mission, we have brought on as many team members as possible to work on a variety of projects and provide community assistance. This work is possible thanks to the Chan Zuckerberg Initiative and individual sponsors. 

Research Support Interns

Sophie Stein Sophie Stein is a rising senior at Cornell University pursuing a degree in Human Development. She has a special interest in medical research.

Sara GerberSara Gerber is a genetic counseling graduate student at Stanford University. She is passionate about rare disease research and advocacy, bioethics, and public health. 

Sally LeungSally Leung graduated from UC Irvine with a B.A. in Public Health Policy. She is excited to start a Master’s in Public Health program and is interested in exploring how healthcare inequities affect chronic and infectious diseases in medically underserved communities

Fundraising Support Interns

Jeremiah PaulJeremiah Paul is a rising senior at the University of Miami, studying Business and Computer Science. Diagnosed with a chronic illness at a young age, he understands the challenges faced by the Lafora community and wants to use his skills to support our cause.

Vaishali JainVaishali Jain is a rising junior at UC San Diego majoring in Molecular and Cellular Biology and Global Health. She is passionate about health equity, community outreach, and advocacy.

Science Communications Interns

Samy SharifSamy Sharif is starting medical school in the fall and is eager to help with Lafora advocacy efforts. He wants to make a lasting impact by creating accessible resources and sharing powerful stories. 

Jhanavi KotianJhanavi Kotian is a senior at San Jose State University, majoring in Biological Sciences. She is eager to bridge the gap between families and the scientific community through effective, compassionate communication.

Anna GouldAnna Gould is a rare disease advocate who graduated from Washington University with a degree in Biology in 2024. She shares about her journey with Marfan Syndrome on her blog and is eager to bring her skills to help the Lafora community.

Organization Development Fellow

Kait FedorKait Fedor has a passion for nonprofit development and a drive to raise funds and support for the Lafora disease community. She earned her MS in Nonprofit Management and Philanthropy from Bay Path University in 2024. 

New Team Members Committed to the Mission

Our expanded team remains committed to improving the lives of those affected by Lafora disease and helping accelerate the development of treatments. Please make everyone feel welcome as they assist with projects this summer, and don’t hesitate to contact us if you have any questions.

 

Director of Family Support Announcement

This is a photo of Niki Markou, new Director of Family Support, smiling.Chelsea’s Hope Welcomes First Director of Family Support

We are thrilled to announce our first Director of Family Support is Niki Markou.

She will be responsible for helping to successfully plan, implement, and continually improve Chelsea’s Hope’s support, registry coordination, and patient community support programs. We created this new role to better serve our mission of improving the lives of those affected by Lafora Disease.

Meet the Team

You might know Niki from the Fighting the Rare documentary or her advocacy work. She is a powerful force in the Lafora Disease community! She has served as Marketing and Communications Director on the Board since she joined Chelsea’s Hope in 2020. Her daughter Angelina is the only patient diagnosed with Lafora Disease in Australia, and Niki frequently shares their story to raise awareness with news media, our partner organizations, and via Lafora Initiative.

She is a passionate advocate for her daughter, other Lafora disease patients, and the rare disease community. We hope you will join us in congratulating Niki on her new position! We are grateful for her commitment to improving the lives of those affected by Lafora and advancing the mission of Chelsea’s Hope.

Tag Archive for: meet the team