The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Now Recruiting: ION283 Safety Study
/by Christine KellyThe application packet for the ION283 safety study is now available! You can view the application as a PDF or download a Word document. Please read the email below from Dr. Minassian: “Dear Lafora disease patients and families, We are now ready to receive referrals for consideration for inclusion into the clinical trial: Safety and Efficacy of […]
Apply to Join the Board of Directors!
/by Christine KellyAnnouncing Holiday Season Auction
/by Christine KellyChelsea’s Hope Announces Launch of Advisory Board
/by Christine KellyAs announced during our 15-year celebratory dinner, Chelsea’s Hope is pleased to share the launch of our Advisory Board. Chelsea’s Hope has a dedicated Board of Directors, staff, and volunteers who work to execute our mission. To accelerate our path to treatment and expand our capacity to serve families with Lafora, the Board nominated 11 […]