The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
Summary of 2019 Lafora Workshop
/by Frank HarrisSummary of 2019 Lafora Workshop
5th International Lafora Disease Workshop
/by Alan BarterThe 5th International Lafora Disease Workshop is scheduled for September 9-11, 2019 in Alcala Spain. Please see attached for additional details. 2019 LD workshop
Important paper published today on advances in research …
/by Alan BarterNew paper titled, “Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion”, published today! Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion Brewer et al., Targeting Pathogenic Lafora Bodies in Lafora Disease Using an Antibody-Enzyme Fusion, Cell Metabolism (2019), https://doi.org/10.1016/j.cmet.2019.07.002
New information about the upcoming clinical trials:
/by Danielle GoldsmithNatural History and Functional Status Study of Patients With Lafora Disease