New article about Lafora disease

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 New from Dr. Jordi Duran! It’s a review on how the accumulation of glycogen in astrocytes, glial cells in the central nervous system, contribute to Lafora disease and other neurodegenerative conditions.

Our Social Media

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Connect with Chelsea’s Hope Lafora Children Research Fund across social media! We’re on Facebook, Instagram, Twitter, LinkedIn, TikTok, Threads, and YouTube. Give us a follow or a like, and engage with our content to help raise awareness!

Interested in becoming a Lafora Disease advocate on socials? Contact christine@chelseashope.org for more information.

 

Chelsea’s Hope Received CZI Grant to Advance Lafora Research

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We are so excited and grateful to share that, in partnership with the University of Texas-Southwestern, we’ve received a Chan Zuckerberg Initiative grant to advance Lafora disease research. The project is titled Closing the Knowledge Gaps in Lafora, a Fatal Neurodegenerative Disease.

The research team includes primary investigators Dr. Berge Minassian and Dr. Kit Donohue, as well as Dr. Maria Chahrour, Dr. Sharmistha Mitra, Dr. Felix Nitschke, and Dr. Matt Gentry.
Project goals include:
? Connecting researchers to the patient community
? Engaging patients in research
? Opening the path to therapy
Read more

AmazonSmile Ending

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AmazonSmile online shopping ending.

AmazonSmile is ending February 20, 2023.

AmazonSmile is ending on February 20, 2023.

Amazon has donated $3,832.56 to Chelsea’s Hope since we joined the AmazonSmile program in 2021.

It might not be much to many, but it’s a lot to us!!! We are grateful for every cent and disappointed that the program is ending. Here’s part of their official statement:

“To help charities that have been a part of the AmazonSmile program with this transition, we will be providing them with a one-time donation equivalent to three months of what they earned in 2022 through the program,* and they will also be able to accrue additional donations until the program officially closes in February.”
So, you have until February 20 to shop and support Chelsea’s Hope.

*Chelsea’s Hope anticipates at least a $200 one-time donation
Shop AmazonSmile Read AmazonSmile’s Announcement