Entries by Christine Kelly

Volunteer Spotlight: Camilla Translated Six Lafora Disease Resources from English to Italian

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Chelsea’s Hope is grateful to announce that volunteer Camilla Bozzi has translated six Lafora Disease resources from English to Italian. The documents will help families access support, educational resources about Lafora, and updates on research. We had the pleasure of meeting Camilla at the 2023 Lafora Disease Science Symposium in Bologna. She applied to volunteer […]

Chelsea’s Hope Earns 2024 Platinum Seal of Transparency

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Chelsea’s Hope is thrilled to announce we’ve just earned a Platinum Seal of Transparency from Candid for 2024! We are excited to share the work our nonprofit does through our Candid nonprofit profile, and we invite you to view it and keep up to date with our impact. We shared information about our mission, programs, […]

Epilepsy Day and SAP 2024

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Chelsea’s Hope Supports Epilepsy Day and Seizure Action Plan Awareness Week 2024 Chelsea’s Hope proudly supported Epilepsy Day on Monday, February 12, 2024. This International Epilepsy Day, we joined in raising awareness on social media, including sharing facts about Lafora progressive myoclonus epilepsy. For example… Did you know?  Seizures in adolescence are one of the […]

Giovanna’s Story

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Giovanna Monda has three children affected by Lafora disease. Christian, the oldest, passed in 2021. Then, Tracy and Carmen were diagnosed with Lafora disease in 2022. Giovanna shares her family’s story below. Select the toggle to read the original version in Italian or an edited version in English. Every bit will directly help her family. […]