Entries by Christine Kelly

Epilepsy Day and SAP 2024

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Chelsea’s Hope Supports Epilepsy Day and Seizure Action Plan Awareness Week 2024 Chelsea’s Hope proudly supported Epilepsy Day on Monday, February 12, 2024. This International Epilepsy Day, we joined in raising awareness on social media, including sharing facts about Lafora progressive myoclonus epilepsy. For example… Did you know?  Seizures in adolescence are one of the […]

Giovanna’s Story

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Giovanna Monda has three children affected by Lafora disease. Christian, the oldest, passed in 2021. Then, Tracy and Carmen were diagnosed with Lafora disease in 2022. Giovanna shares her family’s story below. Select the toggle to read the original version in Italian or an edited version in English. Every bit will directly help her family. […]

Announcing February Research Roundtable Speakers

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Dr. Mitra and Jeff Milton to Join Chelsea’s Hope Lafora Disease Research Roundtable on 8 February We are excited to announce the two speakers that will present at our February research roundtable. Sharmistha Mitra, Ph.D., is an Instructor in the Department of Pediatrics, Division of Child Neurology at UT Southwestern Medical Center. She joined the UT […]

Help Lafora Patient Zaina and Family Evacuate Gaza

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Lafora patient Zaina and her family want to evacuate Gaza; donate to their GoFundMe today. A 17-year-old from Gaza City has Lafora Disease. Her entire family has been bombed, and they evacuated their home. They have moved across Gaza several times to escape the fighting. They have been displaced into a shelter and ran out […]