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About Chelsea's Hope

This author has not written his bio yet.
But we are proud to say that Chelsea's Hope contributed 38 entries already.

Entries by Chelsea's Hope

The Ahmed Family Lafora Tragedy

November 17, 2013/by Chelsea's Hope

The Sunday Times, U.K. – Lois Rogers, one of Shekeela Ahmed’s teenage children, has died. Her other two will soon follow, as regulations deter research [Read more]

Dr. Minassian Personal Correspondence

September 23, 2013/by Chelsea's Hope

Dear parents and friends who care for Lafora patients, Each of you as a group or individually asked me for an update. I will not write long, because I explained to all of you our therapy projects. [Read more]

Funding from Epilepsy Canada brings a cure for Lafora Disease within reach

August 14, 2013/by Chelsea's Hope

Epilepsy Canada has directed its latest funding award toward important research in finding a cure for Lafora disease. [Read more]

Italian Association Conversation with Dr. Minassian

July 12, 2013/by Chelsea's Hope

LETTER FROM DR. BERGE MINASSIAN JULY 12, 2013 IN RESPONSE TO QUESTIONS FROM THE ITALIAN LAFORA ASSOCIATION [Read more]

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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

  • Press Release: United Against Lafora, Families Worldwide Raise Awareness

  • New Resource: Lafora Anti-Seizure Medication Guidelines

  • Join in Lafora Body Disease Day 2026!

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  • Social Security Added Lafora to Compassionate Allowances List

  • Elpida Therapeutics’ Press Release

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  • Update on the ION283 Program from Telethon

  • Introducing the Lafora Clinical Network Registry

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

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info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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