Entries by Chelsea's Hope

Noventia’s Reply to Lafora Patient Community

/by

Noventia replied to the open letter from the Lafora patient community that they were in the final stages of formalizing an agreement with Fondazione Telethon for the clinical development of ION283. Here are their answers to some of our questions: “• Clinical Trial Phase: We are preparing to submit an application for a Phase 1 […]

New Team Members Join Chelsea’s Hope for the Summer

/by

We are thrilled to introduce nine new team members who will be joining us this summer. Chelsea’s Hope was amazed when we had more than 500 applications for our 2025 internship program. As the organization seeks to expand its capabilities to achieve our mission, we have brought on as many team members as possible to […]

Announcing June 18th ION283 Q&A: What’s Next?

/by

Questions about the ION283 Safety Study or what’s next?  We hope you will join us for a Zoom ION283 Q&A next Wednesday, June 18th, at 4 p.m. ET. Please register in advance to attend the meeting. While we have our FAQs, a lot has changed over the past year. We are so thankful that members […]