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2025 Chelsea's Hope Lafora Children Research Fund Annual Report info@chelseashope.org www.chelseashope.org 2025 Annual Report

2025 Annual Report

February 18, 2026/by Chelsea's Hope

Chelsea’s Hope published our 2025 Annual Report! Inside, you’ll find a message from the President of the Board of Directors, Jenifer Merriam, and a summary of our impact in 2025. We also include a financial statement, goals for 2026 and beyond, and acknowledgments.

Thank you to our generous donors, committed research network, and courageous families for supporting Chelsea’s Hope last year. We appreciate your continued partnership to reach a cure!

Download the 2025 Annual Report Right-open Right-open

Stay connected by signing up for our mailing list and following our social media for regular updates. We always welcome volunteers to support our cause and invite you to join Chelsea’s Champions with a monthly gift to support our work in 2026 and beyond.

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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

  • Lafora Therapy Q&A Resources

  • Student Ambassador Applications Open

  • Social Security Added Lafora to Compassionate Allowances List

  • Elpida Therapeutics’ Press Release

  • ION283 to be Developed by Elpida Therapeutics

  • Update on the ION283 Program from Telethon

  • Introducing the Lafora Clinical Network Registry

  • Meet our 2026 Summer Interns!

  • Updates for the Lafora Therapy Pipeline: Requesting information from our Research Community

  • Telethon’s Statement on the ION283 Clinical Trial Pathway for Lafora

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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Link to: Telethon’s Update on the ION283 Clinical Trial Pathway for Lafora Disease Link to: Telethon’s Update on the ION283 Clinical Trial Pathway for Lafora Disease Telethon’s Update on the ION283 Clinical Trial Pathway for Lafora Dis...January 20, 2026 Update Fondazione Telethon logo Link to: Telethon’s Statement on the ION283 Clinical Trial Pathway for Lafora Link to: Telethon’s Statement on the ION283 Clinical Trial Pathway for Lafora March 10, 2026 Statement from Fondazione TelethonTelethon’s Statement on the ION283 Clinical Trial Pathway for Lafora
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