We’re part of the @ChanZuckerbergInitiative’s #RareAsOne Network

A group of 50 patient-led organizations that are strengthening rare disease communities, improving diagnosis, accelerating research and driving progress in the fight against rare diseases.


Rare As One

Patients are a powerful force in driving research for rare disease — we provide critical insights about our diseases and are fueling significant discoveries.

7,000 rare diseases, one community fighting for cures. 

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