We’re part of the @ChanZuckerbergInitiative’s #RareAsOne Network

A group of 50 patient-led organizations that are strengthening rare disease communities, improving diagnosis, accelerating research and driving progress in the fight against rare diseases.

Learn more here.

Patients are a powerful force in driving research for rare disease — we provide critical insights about our diseases and are fueling significant discoveries.

7,000 rare diseases, one community fighting for cures.