Tag Archive for: event

18 June 2025 wednesday Register online to attend the Zoom meeting. ION283: what's next? Q&A Submit your questions beforehand.

Announcing June 18th ION283 Q&A: What’s Next?

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Questions about the ION283 Safety Study or what’s next?  We hope you will join us for a Zoom ION283 Q&A next Wednesday, June 18th, at 4 p.m. ET.

Please register in advance to attend the meeting.

While we have our FAQs, a lot has changed over the past year. We are so thankful that members of the UTSW team will join us at the Q&A to share what they know. Please submit questions through this form by Monday, June 16th, for Dr. Minassian and Dr. Messahel to review them before the meeting.

Chart showing 6/10 patients enrolled in the ION283 safety study and 7/10 patients funded

Six patients have been enrolled in the ION283 Safety Study. We have funded the seventh participant and need to raise more for the final three children to join.

We will use Zoom’s closed caption translation feature. Please do not hesitate to join us in the ION283 Q&A or submit a question for us to ask if your first language is not English.

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Town hall To discuss fundraising efforts and plan as a community. FULLY FUND THE SAFETY STUDY21 MAY 2025 WEDNESDAY Southwestern William P Clements Jr. U Register online to attend the Zoom meeting.

Announcing a Town Hall: Fully Funding the Safety Study

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We hope you will join us for a Zoom Town Hall next Wednesday, May 21st, at 4 p.m. ET, to discuss fully funding the safety study. Register to attend today!

We have less than a month to fundraise to enroll the final four patients on the original timeline. Learn more about our fundraising initiatives and how you can get involved when you join our Town Hall next week.

Six out of 10 patients have been enrolled in the ION283 Safety Study.

We will use Zoom’s closed caption translation feature. Please do not hesitate to join us if your first language is not English.

Wondering about what’s next for ION283 development? Check our ION283 Safety Study FAQs and stay tuned for more information about a Q&A in June. We will not discuss that next week; we will focus on fundraising planning.

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