Tag Archive for: childhood dementia initiative

The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.

FACE It to Raise Awareness of Childhood Dementia

/by

Chelsea’s Hope joins the Childhood Dementia Initiative (CDI) in recognizing next Wednesday, September 17, 2025, as Childhood Dementia Day. We will join the FACE It awareness campaign to make childhood dementia impossible to ignore. 2025 is the third year that Chelsea’s Hope is participating in the movement. We invite you to join us!

The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.

Did you know that Lafora is one of hundreds of genetic conditions that cause childhood dementia? It is devastating. We need more attention and support to reach treatments, improve outcomes, and save lives.
That’s why we’re joining the Childhood Dementia Initiative‘s #FaceIt campaign to spread awareness that children get dementia, too.

View a childhood dementia fact sheet HERE.

Join us in a casual Zoom on September 17th from 9-10 AM PDT and help us raise awareness of childhood dementia. We invite you to join the Zoom call with your face colorful and impossible to ignore, or paint it as your art activity during our virtual meet-up. At the end, we’ll take a group photo for anyone who wants to participate. Together, we’ll draw attention to childhood dementia.

I’m in!
The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.

Chelsea’s Hope Joins FACE It 2024

/by

Wednesday, September 18th, is Childhood Dementia Day, and we’ve joined the FACE It awareness push to make childhood dementia impossible to ignore. 2024 is the second year Chelsea’s Hope is participating in the movement. We invite you to join us!

The Childhood Dementia Initiative (CDI) started the FACE It campaign to raise awareness of childhood dementia, which so many people don’t know exists.

What is childhood dementia?

We see what dementia does to our loved ones with Lafora disease. Most people associate the life-altering symptoms of dementia with older people, but according to our friends at CDI, more than 100 genetic conditions cause dementia in childhood. The prognosis for children with childhood dementia is dire: 50% die before the age of 10, and 70% before reaching adulthood. All will die prematurely. View a childhood dementia fact sheet HERE.

The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.


On September 18th, we invite you to make your face impossible to ignore! Join the fun with face paint, makeup, or a filter before posting to social media. Together, we’ll draw attention to childhood dementia and fight Lafora disease.

Be sure to send Chelsea’s Hope your photos or tag us if you want us to feature you on our social media. Use the hashtags #ChildhoodDementia and #FACEit to join. You can also check out CDI’s FACE it kit with tips and resources to raise awareness.

So, will you join the movement?

I’m in!
Title text on the left says 'upcoming webinars.' Below is a bullet point list of text that says 'Childhood Dementia Introduction Tue. 5th September 10:30 - 11:30 pm EST Accessing Emerging Treatments for Childhood Dementia Thu. 7th September 6 - 6:45 pm EST We Don't Fit Report Tue. 10th October 9:30 - 10:30 pm EST.' On the right text says 'hosted by: Childhood Dementia Intiative. Colorful ovals are in the top right corner and the Chelsea's Hope Lafora Children Research Fund logo is in the bottom right corner.

Childhood Dementia Webinars

/by

The background is mostly white with gray hexagons. Title text on the left says 'upcoming webinars.' Below is a bullet point list of text that says 'Childhood Dementia Introduction Tue. 5th September 10:30 - 11:30 pm EST Accessing Emerging Treatments for Childhood Dementia Thu. 7th September 6 - 6:45 pm EST We Don't Fit Report Tue. 10th October 9:30 - 10:30 pm EST.' On the right text says 'hosted by: Childhood Dementia Intiative. Colorful ovals are in the top right corner and the Chelsea's Hope Lafora Children Research Fund logo is in the bottom right corner.

Our friends at Childhood Dementia Initiative are hosting three childhood dementia webinars we want to let you know about!

1. Childhood Dementia Introduction

Tuesday, 5th September 2023 from 10:30 – 11:30 pm EST

Register now


2. Accessing Emerging Treatments for Childhood Dementia

Thursday, 7th September from 6 – 6:45 pm EST

Register now


3. We Don’t Fit Report

Tuesday, 10th October from 9:30 – 10:30 pm EST

Register now


Why attend?

Dementia is one of many symptoms of Lafora Disease. These free webinars could benefit families and caregivers, though healthcare providers, researchers, and advocates who attend could better understand childhood dementia.

Please note: Childhood Dementia Initiative is located in Australia, but the events automatically show up in your timezone when you view the session details. We know the last webinar will conflict with our 2023 Lafora Disease Science Symposium, but wanted to pass along the information if you are signed up to get virtual recordings of the Symposium and available on October 10 to learn about CDI’s report.