The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
University of California San Diego – Sanford Consortium of Regenerative Medicine
/by Chelsea's HopeSanford Consortium of Regenerative Medicine, University of California San Diego on June 12-13, 2014 The workshop was directed by Dr. Jack Dixon, organized by Dr. Carolyn Worby and Kim Rice, and was sponsored by Chelsea’s Hope Lafora Research Fund. It included a welcome address by Linda Gerber, a presentation and video titled “Kristen’s Story” by […]
The Ahmed Family Lafora Tragedy
/by Chelsea's HopeThe Sunday Times, U.K. – Lois Rogers, one of Shekeela Ahmed’s teenage children, has died. Her other two will soon follow, as regulations deter research [Read more]
Dr. Minassian Personal Correspondence
/by Chelsea's HopeDear parents and friends who care for Lafora patients, Each of you as a group or individually asked me for an update. I will not write long, because I explained to all of you our therapy projects. [Read more]
Funding from Epilepsy Canada brings a cure for Lafora Disease within reach
/by Chelsea's HopeEpilepsy Canada has directed its latest funding award toward important research in finding a cure for Lafora disease. [Read more]