The Ahmed Family Lafora Tragedy
The Sunday Times, U.K. – Lois Rogers, one of Shekeela Ahmed’s teenage children, has died. Her other two will soon follow, as regulations deter research [Read more]
Dr. Minassian Personal Correspondence
Dear parents and friends who care for Lafora patients,
Each of you as a group or individually asked me for an update. I will not write long, because I explained to all of you our therapy projects. [Read more]
Funding from Epilepsy Canada brings a cure for Lafora Disease within reach
Epilepsy Canada has directed its latest funding award toward important research in finding a cure for Lafora disease. [Read more]
Italian Association Conversation with Dr. Minassian
LETTER FROM DR. BERGE MINASSIAN JULY 12, 2013 IN RESPONSE TO QUESTIONS FROM THE ITALIAN LAFORA ASSOCIATION [Read more]
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
